THE FIBROMATES JOURNAL

by Irene Roth, Blog Editor/Writer

As we approach the final days of the year, many fibromates feel a swirl of mixed emotions. We may look back on the last twelve months and see moments of courage, unexpected setbacks, small triumphs, and days when getting through was an achievement in itself. Reflection can be a powerful practice, especially when living with a condition that demands resilience, pacing, and self-compassion. This is the perfect time to pause, breathe, and honor the journey you’ve traveled.

One of the most empowering ways to reflect on the year is to begin with your wins, no matter how small they may seem. For fibromates, a “win” is not defined by productivity, perfection, or meeting society’s expectations. A win might be attending a meeting you once felt unsure you could manage, saying no when your body needed rest, or establishing a new boundary that protected your wellbeing. Perhaps you discovered a new ritual that brought calm during flares—gentle stretching in the morning, evening journaling, or quiet time with a cup of herbal tea. These count. They matter. And they should be celebrated.

You might also consider your creative wins: perhaps you worked on a writing project, started reading again, or nurtured a new hobby. Even on the most difficult days, moments of creativity can act as anchors, reminding you that beauty and meaning still flourish in your life. Look back at your notebooks, your planner, or your phone’s photo gallery. What memories make you proud? What moments made you stronger?

Equally important are the lessons collected throughout the year. Living with fibromyalgia invites us to continually adapt—sometimes learning through discomfort, frustration, or deep fatigue. Maybe you learned that your body speaks louder than your plans. Maybe you discovered that a full life is not the same as a full schedule. Or maybe you realized that you thrive when surrounded by people who truly see and support you.

Consider the boundaries you held—or wished you’d held. The commitments you released. The relationships that nurtured you, and the ones that drained you. Reflection allows you to gather wisdom without judgment, as if gently sorting through a box of memories, choosing what to keep and what to let go.

Then ask yourself: What do I want to carry into the new year?
Perhaps it’s a sense of calm. A commitment to listen to your body. A gentler inner voice. A rekindled creative spark. You don’t need to overhaul your life. Small shifts can create profound change.

As you reflect, try writing down three wins, three lessons, and three intentions for the year ahead. Let this be a ritual of honoring your resilience. You have come through every hard moment. You’ve discovered strength you didn’t realize you possessed. And you are stepping into the new year wiser, softer, and more aligned with what truly matters.

Let your reflection be an act of self-love. You deserve that gift to give to yourself for Christmas.

Enjoy the holidays!

by Irene Roth, Blog Editor/Writer

The holiday season is often portrayed as a whirlwind of activity—shopping, gatherings, endless preparations, and emotional expectations. But for fibromates, this time of year can feel especially overwhelming. Fatigue, pain flares, sensory overload, and social pressure all collide at once. The good news? A peaceful, joy-filled holiday is absolutely possible, especially when approached with intention, boundaries, and gentleness.

The first step to creating a peaceful season is simplifying your expectations. You do not need to participate in every event or uphold every tradition. Choose what genuinely brings you joy, and release the rest. Ask yourself, “What would make this holiday feel meaningful, not stressful?” Perhaps it’s a small gathering instead of a full dinner party. Perhaps it’s lighting a candle and listening to soft music instead of hosting. The holiday you create should reflect your energy—not someone else’s expectations.

Next, give yourself permission to pace everything. For fibromates, pacing isn’t optional—it’s essential. Spread out tasks over several days. If decorating tires you out, do it in tiny stages. If shopping drains you, consider online options or gift cards. Build rest periods into your days. A peaceful season is one where your body feels respected and supported.

Another vital part of creating a joyful holiday is tending to your emotional wellbeing. This time of year often brings complicated feelings—nostalgia, grief, loneliness, or unmet expectations. Try to name what you’re feeling without judgment. Allow yourself the space to feel whatever arises. Moments of quiet reflection can bring clarity and ease. Journaling, meditation, or talking with a supportive friend can help lighten the emotional load.

Connection, however small, can also bring joy. Instead of large gatherings, consider one-on-one visits or short video calls that don’t drain your energy. Surrounding yourself with people who understand your needs—and respect them—can transform the season from exhausting to uplifting.

Don’t forget your sensory comfort. Soft clothing, warm blankets, gentle lighting, and soothing scents like vanilla or peppermint can create a grounded, peaceful atmosphere at home. Design your environment to feel like a sanctuary.

For added joy, integrate small rituals that nourish your spirit. A morning gratitude list. A quiet winter walk. A seasonal treat enjoyed slowly. A favorite holiday film watched under a cozy blanket. Small practices often create the biggest sense of joy.

Lastly, remember that your worth is not measured by how much you do. You don’t need to perform, host, or overextend to create a meaningful holiday. Your presence, your kindness, and your heart are more than enough.

This season, may you step gently, choose what truly matters, and create moments of peace that carry you into the new year with gratitude and ease.

We now understand that a child’s nervous system—and later, an adult’s—is deeply shaped by the parent or caregiver who raised them. Emotional regulation, safety, and stress responses are not learned in isolation; they are absorbed through daily interactions in the family environment.

Many people living with fibromyalgia report childhoods marked by chaos of one kind or another. When sharing their histories with healthcare providers and therapists, common themes emerge: parents struggling with addictions, personality disorders, or neurodivergence such as autism or ADHD that went undiagnosed at the time.

All of these circumstances would have made parenting in a consistent, emotionally attuned, and steady way extremely difficult.

In other cases, the issue was neglect—either physical neglect or a lack of emotional connection. Some parents were not intentionally absent but were forced to divide their attention due to financial strain, long working hours, or the need to care for an ill spouse or sibling.

Parenting average children is challenging enough. Add a sensitive, empathetic, creative, intuitive, and emotionally intense child—one who requires a different parenting model to truly thrive—and you have a recipe for disaster when parents are unable to meet those deeper emotional needs.

The situation becomes even more complex when parents themselves live with undiagnosed mental health conditions such as anxiety, depression, mood disorders, or personality disorders.

Highly sensitive children often begin to take on responsibility for what is not being said. They read the emotional undercurrents of the household, sensing tension and unspoken conflict. Frequently, they become the family’s black sheep—the ones who inadvertently point out hypocrisy or imbalance—while also assuming emotional burdens they were never meant to carry.

When parents struggle with mood or personality disorders, these children’s inner worlds are rarely reflected back to them accurately. Instead of being seen as they are, their experiences are filtered through a parental lens shaped by fear, ego, anxiety, or envy.

Over time, their highly sensitive nervous systems can become hypervigilant—constantly waiting for the next emotional shoe to drop. This chronic state of alertness increases long-term stress on the body and may contribute to neuroinflammation, chronic pain, and immune system dysfunction in adulthood.

These children are also at greater risk of codependency and enmeshment, particularly in families affected by separation, widowhood, limited social support, or poverty.

Children’s jobs are to be children—not emotional caretakers or punching bags for parents who struggle with emotional regulation.

Nor is it their responsibility to manage their parents’ emotional states, carry adult concerns, or feel toxic shame and guilt for seeking independence. Individuation is a natural and healthy developmental process.

Sadly, families of origin often label these children as broken or damaged, treating them as though something is fundamentally wrong with them—when, in truth, they are often remarkably normal.

More often than not, they simply reflect what their parents or caregivers lack in themselves.

This kind of treatment can have lifelong consequences, deeply impacting a person’s psyche and often requiring years of therapeutic work to gently excavate and heal.

Both positive and negative experiences affect sensitive individuals more intensely than average, but it is the negative events that tend to leave the deepest imprints. Many are repeatedly told they are too emotional, too sensitive, or need to toughen up.

Over time, this invalidation can be profoundly damaging. For those with significant familial and interpersonal trauma, healing often requires a strong therapeutic relationship. Without it, some may retreat into shallow relationships—or avoid relationships altogether—as a means of self-protection.

Jade Bald is a freelance writer, as well as an author and screenwriter in progress. She lives in a town in Ontario. When not writing, she is cuddling her cat, listening to music, and watching the latest series on Amazon Prime Video.